​2019 PANS Awareness Day

Event Date: 
Oct 9 2019 - 9:30am to 2:00pm
Event Area: 
Capitol Building
Event Location: 
1st Floor Rotunda - Entire Rotunda
Event Type: 
Public Event
Expected Attendance: 
26 - 100
Add'l Information: 
​Web Page With Event Information: http://pandasnetwork.org/. I have filed a proclamation request for October 9th as PANDAS/PANS awareness day. PANS stands for Pediatric Acute-Onset Neuropsychiatric Syndrome and is thought to affect as many as 1:200 children. It is a very misunderstood and undertreated condition due to lack of provider education and awareness. Currently, many families are traveling out of state to find a provider to treat their child, and many pay tens of thousands out of pocket for treatment. We are simply families with children affected by PANS looking to raise awareness for this condition. At this point, all we have planned is to set up educational posters and have flyers available to hand out.